2015 Report details for project: care.data

Project name: care.data - there are 2 reports for this project: 2015, 2016
Google search: Google search on project name (opens in new window) opens in new window
Organisation: DOH (D12) - see all reports for this organisation
Report year: 2015 (data is from Sept 2014)
Category: ICT - see all reports for this category
Description: The NHS has some of the best information systems in the world. Since the 1980s, we have been collecting information about every hospital admission, nationwide. This information is brought together at the Health and Social Care Information Centre, where it is anonymised. The information has been invaluable for monitoring the quality of hospital care, for planning NHS services, and for conducting research into new treatments. Whilst we have this type of information for some care provided outside hospitals, there are significant gaps meaning that it is not possible to see a complete picture of the care that individuals receive. NHS England has therefore commissioned a programme on behalf of the NHS, public health and social care services to address these gaps. Known as the care.data programme, this initiative will ensure that there is more rounded information available to citizens, patients, clinicians, researchers and the people that plan health and care services. Our aim is to ensure that the best possible evidence is available to improve the quality of care for all.
DCA (RAG): Red
DCA text: The MPA RAG rating was Red at Q2 2014. In February 2014, NHS England announced a six month extension to the proposed roll out of the care.data programme in order to raise awareness, listen and act on the views of patients, health professionals and key stakeholders, and to discuss both the benefits and risks involved. This enabled time to be taken to raise awareness of the benefits of data sharing for purposes beyond direct care and the safeguards in place to secure patient data and to ensure the public are aware of their choices and are informed on how they can ‘opt out’ of care.data should they wish to do so. The outcome of the engagement was the message that clarity was required about how personal information would be used, what information would be collected and how patients would be communicated to on their right to ‘opt out’. Additionally, it was clear that consideration should be given to the support required by GP practices to meet the fair processing requirements and successfully communicate these messages to support the introduction of care.data, and to implement care.data through a phased roll-out. The first stage of this phased roll out will take the form of a discovery stage working with up to 250 pathfinder GP practices. This approach will allow NHS England and the Health and Social Care Information Centre to work with a smaller number of GP practices to ensure that the programme understands what is required to support GP practices in meeting fair processing responsibilities and ensure patients are aware of how their data will be used and the choices available to them - this is referred to as the pathfinder stage. The ‘pathfinder stage’ has been established as a project within the care.data programme, it will provide key information from which the programme team can learn and assess the impact before progression into a wider roll-out. No data will be extracted from GP practice systems – including during the ‘pathfinder’ until such time that the national data guardian is satisfied. The Cabinet Office's Major Projects Authority rated delivery confidence as Red in view of the Programme needing to clarify, agree and communicate the programme scope; appoint a full-time Senior Responsible Owner; reconstitute the Programme Board with a clear role and responsibilities; approve explicit go/no go criteria; agree and clarify finances; assign owners to key risks; and recruit key personnel. Action taken by the Programme includes changing the Programme Board membership with a clear role, responsibilities and Terms of Reference; scheduled meetings at clear decision points in the programme; Programme Board approved explicit go/no go criteria to ensure that delivery plans are viable before the pilot rollout commences; and priority given to the recruitment of key personnel in order to move forward to a more controlled and stable phase of delivery. Care.data plan to achieve the following in order to move towards an improved rating for the programme: • Complete the Programme Business Case assurance and approval process; • Complete the pathfinder stage of the first phase of the programme and secure approval to proceed to further roll-out; • Plan national roll out of the primary care extract to deliver primary-secondary care linked dataset, including development of an outline business case; • Determine priority datasets for inclusion in the programme and initiate appropriate workstreams; and • Further enhance programme planning and risk management to ensure dependencies on other national programmes are well understood and managed.
Start date: 2012-09-01
End date: None
Schedule text: The ‘pathfinder stage’ has been established as a discovery stage within the care.data programme, it will provide key information from which the programme team can learn from and assess the impact before approval and progression onto a “wider roll-out”.
Baseline: £0.00m
Forecast: £0.00m
Variance: None%
Variance text: Baselined of the financial figures took place in January 2015. 2014/2015 Budgets include all care.data and technology spend. Technical costs are to be met by the Health and Social Care Information Centre (£1.2 million). Programme and communications costs are to be met by NHS England (£4.08 million). All costs are in relation to the pathfinder stage that preludes the Programme. The projected overspend is expected to be brought in on budget by March 2015.
Whole Life Cost: £0.00m
WLCost text: To be confirmed through the business case, which is in the progress of being developed. Discussions are taking place between the Health and Social Care Information Centre and NHS England to agree funding for 2015/16. Note data is not provided: There is no approved financial information available, although the business case assurance and approval is in progress. The figures for Financial Year 2014/15 have been agreed and reported as above (correct April - December 2014). The business planning and financial position for Financial Year 2015/16 is also in progress. Variance in forecast versus actual spend is due mostly to the intention to now print patient facing materials for use in pathfinder areas in the next Financial Year.
Notes1: DOH NON CAPITAL Data not provided by department Data not provided by department Data not provided by department Data not provided by department
Sourcefile: IPA_2015.csv

Home Selection Search All Reports All Projects (+dates) All Projects (+costs) All Organisations All Years All Categories

Acknowledgement: GMPP data has been re-used under the Open Government Licence.